We are also getting pretty close to getting Bianca's port out. I'm sure it will feel as if Bianca is missing something. Her port has been part of her for so long now and she really can't remember a life without it. To her it is part of her. We've asked if they could please make sure we get it back because Bianca will want to see what it looked like (and us too).
The only thing that really struck me on the 22nd though is how extremely tired Bianca was after the visit. She became really quiet in the car on the way back home and literally 5 minutes after getting home Bianca was fast asleep. Unfortunately we are not quite there yet with Bianca's eating. Hard to know if it is as a result of the chemo, or if Bianca might be turing into one of those vegetarians who prefer chicken rather than red meat or if she is just being 6 and fussy. And she lost 1kg since her visit in January. Doctor is not all that worried at the moment because she is within her range, and I guess it is just a matter of putting my foot down a bit more. Along with that Bianca doesn't always sleep all that well. It suddenly occured to me that maybe this whole new fast-paced normal lifestyle might actually be a bit much for Bianca. Sure she copes emotionally, but physically, perhaps not so well. Since I started work we would wake up early, rush out the door, drop Bianca off at before-school care, then school, then after-school care and finally home by 6:30pm. And I guess that is the challenge, finding a normal without putting too much pressure on Bianca. I guess it is easy to sometimes forget that it can take a while to fully recover.
But it is also funny how things work out because it just so happen that I had to resign from my work (last permanent full time work day 29 March and then contracting part-time for the month of April) because Terence's job situation is busy changing and in all likelihood will mean moving back to Wellington. Which means I will stay at home again and this should hopefully have a positive effect on Bianca's energy levels.
And that is our news in a nut-shell...