Today was another monthly hospital visit. I still can't believe how quick it is these days, no more sitting for hours on end waiting for IVIGs to finish running, it is pretty much in and out (okay we still wait 1 hour for bloods). All the results look great - platelets, haemoglobin, neutrophils, lymphocytes. It is very reassuring.
Next month it seems we'll do THE blood test to see what Bianca retained immunity for and whether she'll need to get some (or all ) of her baby immunisastions again. I hope it won't be all, but if we have to then we have to. Doctor even mentioned that if next month's test reveal Bianca did not retain immunity to chickenpox we could either expose her to it and get it over and done with or get the vaccine - I think we'll opt for the vaccine if we need to. And then we'll also get Caitlyn done. To get to this point where it won't matter if she got chicken pox - that is such a huge huge step.
And then (drum roll please) Bianca's port removal is scheduled for 18 March 2010 (it will be a looooong day with clinic in the morning and then theatre in the afternoon). We are hoping they won't bump us (seeing as it is an elective surgery and not a critical surgery), and hopefully all will go according to plan.
But wow, how very unreal this feels. How very unreal it feels to get to this point. But we are very very grateful to get to this point!
Next month it seems we'll do THE blood test to see what Bianca retained immunity for and whether she'll need to get some (or all ) of her baby immunisastions again. I hope it won't be all, but if we have to then we have to. Doctor even mentioned that if next month's test reveal Bianca did not retain immunity to chickenpox we could either expose her to it and get it over and done with or get the vaccine - I think we'll opt for the vaccine if we need to. And then we'll also get Caitlyn done. To get to this point where it won't matter if she got chicken pox - that is such a huge huge step.
And then (drum roll please) Bianca's port removal is scheduled for 18 March 2010 (it will be a looooong day with clinic in the morning and then theatre in the afternoon). We are hoping they won't bump us (seeing as it is an elective surgery and not a critical surgery), and hopefully all will go according to plan.
But wow, how very unreal this feels. How very unreal it feels to get to this point. But we are very very grateful to get to this point!
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6 comments:
I'm pretty sure waiting for an hour must seem like a second in comparison to your long hospital visits before! And YAY for the port date!
What a great report on Bianca! And port removal in March. This is a huge milestone. Thanks for keeping us posted.
RosemaryNY
I'm sure it all feels so surreal for you guys Lea, but I am so happy that you are living in a world of surreal right now. Roll on 18 March!!!
xxx
It's wonderful that Bianca has reached this point - it still seems such a long away for Chris (Sept 2011 end of treatment).
Port removal will be a big positive step... Chris opted to have his Central line removed at the beginning of ltm and being line free has made a huge difference to him!
Hope it all goes well!
OMW! A very important date indeed!
I am so glad that B's bloods look good. It does a parent's heart well to see results in the normal range! :-)
And then port removal time! Wow! What does Bianca think about that? I suspect Woutertjie is going to be very upset when his time comes. He's grown very attached to his "pypie".
Hey Lea, I am glad that life is becoming more 'normal' for you. I have to say that life is better when you do not feel like you are in the middle of a soap opera.
What do you think of the 'two tier' health system proposal? Detailed here by a herald guy who is completely against it: http://www.nzherald.co.nz/health/news/article.cfm?c_id=204&objectid=10622622.
Maybe you will have an opinion about it, and I would be interested in hearing it. I would understand if you did not have time between your beautiful family and you work.
Go Well
K
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