Day 7 - Delayed Intensification

I got up at 04:00 for Caitlyn. She woke up with a dirty nappy and I believe if it wasn't for that, then she would have slept through.

Terence woke up at 5:30 with Bianca standing next to his side of the bed (I trained her well...). She was hungry and finished sleeping. So he got up, gave her something to eat and convinced her to go back to bed. That's the problem with Dexamethasone, it makes her hungry - all the time.

At 8:45 Terence and Bianca went to the hospital. I stayed at home with Caitlyn to try and stick to her routine. Got there and they had to do the usual pre-medication and then after that (it must have been about 12:20 they gave the injections into Bianca's legs). Today was the fourth of six injections. So then they had to wait and eventually at 15:30 left the hospital to come back home. I spent most of my day running after Caitlyn, getting her wherever she crawls and bringing her back to the play room.

At one point I decided to close the toilet and bathroom doors as they seem to be a huge attraction to Caitlyn when she crawls down the corridor. What I didn't realise was that somebody pressed the locking button on the inside of the toilet door. You lock the door by pressing a little button that is just next to the handle, so of course, it would have been easy for somebody to press it when they opened the door from the inside. So when I closed it it was locked and no way to open the door. Lucky the window was open and so when Terence and Bianca came back, Bianca helped by climbing through the window and opening the door from the inside.

As usual after these injections, Bianca was pretty tired tonight and wasn't much interested in doing anything.

Tomorrow will be another long day with her usual Monday chemo.

Medicines today:
  • Dexamethasone - 3.5 tablets in the morning, 4 tablets at night
  • Fluconozole - 10ml at night
  • Erwinia - chemo injections into both legs at the same time

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