On Monday Terence and Bianca went to hospital for their monthly hospital visit. It was going to be tomorrow, but they are quite busy so they asked if we could go in yesterday. They saw a doctor they didn't see before and must say we can't help wondering why this particular doctor even decided to work with kids. This particular doctor didn't interact with Bianca or anything, so we are pretty happy that this doctor is not our usual doctor. So apart from making Terence and Bianca wait a whole 20 minutes after the people just before them left after their appointment, the visit was remarkably quick. For the first time in I don't know how very long Bianca did not have to get an IVIG. It's been a monthly routine for her for a very very long time and suddenly they saw the doctor, got a quick port flush and off they went. Unreal! Bianca's counts all look good so we are very pleased to tick yet another month off. Whilst the first year off treatment is always the riskiest part after treatment ended, it is great to see each month go by and realising it is one month further away from end of treatment date. Next visit will be 25th January.
Bianca is all set for Camp Quality in January and she is so excited. Tonight she got to meet her companion who is lovely and I think the two of them will get along really well. They will have to dress up as some or the other super-hero so we'll have to come up with some ideas of something to make. They try to encourage the kids to make something which is good so as parents we won't have to end up spending hundreds of dollars just to get a fancy costume.
The next few days will be magical and special filled with excitement as the girls count down the days till Friday morning. It will be a time where I will be grateful that we have come this far, that we remained standing, that we remained strong. I've always said I don't regret the journey we walked - we learned so much and got to know so many people along the way. Whilst the cancer journey will always be part of us, it does feel like we have managed to slot into this post-chemo life - it's weird though because I expected it to be much harder to find our new normal. But here we are.
And then this time is also a time where I feel so sad for others who will have a real difficult time during this time. I think of Kyah's family, Christopher's family, and so many others and I so wish the outcome could have been different. And then little Elijah and his family - he has just gone through the whole Bone Marrow Transplant process and is currently in hospital with an infection. They are stuck in Ronald McDonald house far from their home, family and friends now at Christmas and there is a real risk that Elijah might very well still be in hospital on Christmas day with his infection. They've had a pretty tough time too and I simply can't wait for the day that they can go home. Know that you all are in our hearts and in our prayers all of the time!
During this time I would like to wish you all a very merry Christmas and a very very happy New Year. May all your dreams come true!
Bianca is all set for Camp Quality in January and she is so excited. Tonight she got to meet her companion who is lovely and I think the two of them will get along really well. They will have to dress up as some or the other super-hero so we'll have to come up with some ideas of something to make. They try to encourage the kids to make something which is good so as parents we won't have to end up spending hundreds of dollars just to get a fancy costume.
The next few days will be magical and special filled with excitement as the girls count down the days till Friday morning. It will be a time where I will be grateful that we have come this far, that we remained standing, that we remained strong. I've always said I don't regret the journey we walked - we learned so much and got to know so many people along the way. Whilst the cancer journey will always be part of us, it does feel like we have managed to slot into this post-chemo life - it's weird though because I expected it to be much harder to find our new normal. But here we are.
And then this time is also a time where I feel so sad for others who will have a real difficult time during this time. I think of Kyah's family, Christopher's family, and so many others and I so wish the outcome could have been different. And then little Elijah and his family - he has just gone through the whole Bone Marrow Transplant process and is currently in hospital with an infection. They are stuck in Ronald McDonald house far from their home, family and friends now at Christmas and there is a real risk that Elijah might very well still be in hospital on Christmas day with his infection. They've had a pretty tough time too and I simply can't wait for the day that they can go home. Know that you all are in our hearts and in our prayers all of the time!
During this time I would like to wish you all a very merry Christmas and a very very happy New Year. May all your dreams come true!
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1 comment:
Just stopping by to wish you and your family a very Merry and wonderful Christmas. Another month down. No IVIG this month, that says alot about Bianca's state of health at this time. All great news. I wish nothing but the best for you and your family in 2010.
Rosemary NY
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