Two finger pricks today

Today I came home earlier from work in preparation for a meeting with Make a Wish New Zealand. Basically the idea was for them to come and meet us, complete some forms and to discuss with Bianca her special wish. Unfortunately the one volunteer had flu symptoms this morning and this afternoon I received a call to postpone the meeting for when there are no signs of illness. So I spent the rest of the afternoon going through things I need to organise for my visit to Auckland. I have forgotten all the little bits and pieces that I need to keep in mind for a big move like this one.

This morning I phoned Jo to ask her about Bianca's neutrophil levels and basically they are sitting around 0.5 which is pretty much the cut-off. Anything lower and they have to put oral chemo on hold. She also discussed that we are due back in on Monday for monthly Vincristine and of course an IVIG transfusion. So I expect Monday to be a pretty busy day.

Later in the day Jo phoned again and suggested we go in for a blood test just to check whether the neutrophils are indeed busy coming up or down. A good thing to check now, because Monday is still a bit away. As I was at home already we quickly went in for a finger prick. I am hugely proud of Bianca because she ended up needing two finger pricks when the one finger didn't bleed very well and not a single tear in sight! I am so impressed.

Received some great news from CCF and that is that the Christchurch oncologists will now come through weekly. Great news! It is really good that we now have a management representative who will now meet monthly with parents and she is really committed to listening to the parents and working on the communication problems. It is nice that they are working towards an effective solution.

And other than that just crossing all my fingers and toes that Bianca's party will happen. Oh she will be so surprised the day we tell her...