Today Caitlyn walked 11 steps before sitting down again. Wow, 11 steps! It is so cute, she will stand up and then proudly clap hands and smile and then you can see her mind working, trying to figure out what to do next.
Terence had a bit of a tummy bug. I'm really praying very hard we don't all get sick - especially Bianca. We've done so well so far the past month on maintenance and I wouldn't want to have to stay in hospital at this stage.
Tomorrow morning is Bianca's monthly hospital visit so we will be there early in the morning for that. She doesn't have theatre, it will just be some chemo through her port and a check up by the doctor. I expect we will probably have to wait for blood test results in case we need to adjust dosages. We only got enough chemo to last us for the month and will need another prescription tomorrow. And of course we will have 5 days of Dexamethasone again. Let's hope it is just like the previous set of 5 days where she didn't have too many side-effects. Tomorrow is also Day 29 of round 1 of our long term maintenance phase and that means we have now completed 1 month.
Terence had a bit of a tummy bug. I'm really praying very hard we don't all get sick - especially Bianca. We've done so well so far the past month on maintenance and I wouldn't want to have to stay in hospital at this stage.
Tomorrow morning is Bianca's monthly hospital visit so we will be there early in the morning for that. She doesn't have theatre, it will just be some chemo through her port and a check up by the doctor. I expect we will probably have to wait for blood test results in case we need to adjust dosages. We only got enough chemo to last us for the month and will need another prescription tomorrow. And of course we will have 5 days of Dexamethasone again. Let's hope it is just like the previous set of 5 days where she didn't have too many side-effects. Tomorrow is also Day 29 of round 1 of our long term maintenance phase and that means we have now completed 1 month.
Medicines today:
- Mercaptopurine - 1.5 tablet a night
- Co-trimoxazole - 6.25ml twice a day
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