Day 38 - Delayed Intensification

Today Bianca had to go to hospital for her Cytarabine treatment and for a blood test. Terence and Bianca had to wait a bit because another little boy wasn't used to the temporary new consultation room that they are using now over the holiday period. So this little boy wasn't too keen on going into the new room. But eventually they were seen. Doctor Anne is back from leave and Terence discussed with her that Bianca still has a cough that seems to be a bit more often during the day, but she is not too concerned at the moment and until a fever or other infection symptoms develop, there is not much more to do other than keeping an eye on it. In the back of my mind this feels very similar to the beginning when Bianca had a cough and eventually 2 months later we dealt with a viral infection. I really really don't want to go through this again. Doctor Anne also said that from tomorrow Bianca doesn't need to take the Omeprazole anymore. So one less every day.

I stayed at home today and planned to do a whole lot, but unfortunately sometime yesterday I hurt my back a bit (although for the life of me cannot think how this happened), so it is pretty hard walking let alone picking Caitlyn up. Thank goodness for Sanna helping me out today.

So now it is Cytarabine tomorrow, Saturday and Sunday still and then Thioguanine still every night until probably Monday and then a bit of a break from chemo while we wait for counts to recover so that we can start Maintenance.

Bianca was in good spirits today and tonight decided to play "school". I had to be the teacher and she brought me an apple. At some point Daddy joined and she thought it was absolutely funny that Daddy got his answers wrong and then when he talked in class he was asked to sit in the corner. She thought it was very very funny. I think this will become a new favourite game.

Usually Caitlyn hates having stuff put on her head, but today Sanna managed to get this crown on her head and we managed to take the cutest photo. Caitlyn does the cutest things now. She'll wave when you say "bye-bye" and wave to her. She is able to clap her hands when you do. And today she managed to stand by herself for a second or two. It is so cute when you play music and she will move her head and her shoulders.

Medicines today:
  • Omeprazole - 1 capsule a day
  • Co-trimoxazole - 6.25ml twice a day
  • Fluconozole - 10 ml at night
  • Cytarabine through the port [chemo]
  • Thioguanine - 1 tablet at night [chemo]

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