A visit home

Thank you very much to Pacific Forum Line and Ann & Hal O'Rorke for their generous donations to the Funrazor Initiative. Wow, it really means a lot, so thank you very very much.

Bianca decided to make her own breakfast this morning.

So this morning we met Doctor Payal who is from the US and she is a registrar (I think) helping Doctor Anne out. She will be here for a little while before she will go back to the US. Of course we still need those Paediatric Oncologists for the oncology unit to work properly, but it is good that Doctor Anne has somebody in the meantime who could give her a hand. Doctor Payal was really nice and it was good that Bianca was in a good mood so she was really cooperative. Sometimes it takes her a long while to get used to new people and I felt happy that Doctor Payal was able to connect with Bianca straight-away.

No idea yet on when chemo will happen again. They won't start until they are 100% happy with Bianca's chest. She was coughing a bit this morning and I truly hope this is not the start of another viral infection. The last time she had a viral infection we were in hospital for 34 days, most in isolation and with Bianca on oxygen. So I really really hope this is nothing. I've become so neurotic. You hear a little bit of a cough and you start worrying.

Doctor Anne indicated that when Bianca was admitted her CRP levels were sitting at around 200 or 400 (a normal level is 3 and below as far as I know) and currently it is sitting at 69. So it is coming down, but still a bit high. CRP is the indicator that tells the doctors whether there is an infection or not.

Then Doctor Anne said that we were allowed a visit home in between antibiotics and of course there is no way that I will be sitting in that hospital room if we are allowed to go out. We have to be back at 16:00 for the next set of antibiotics and to stay the night. Of course we could have gone to the park or zoo or beach, but I thought it would be nice for Bianca to come home a bit and spend some time with Caitlyn. Whenever Bianca stays in hospital for a while, it always makes such a big difference to her mood just to get out a bit.

Caitlyn truly admires her big sister and she follows her around and she has this huge smile on her face whenever she sees Bianca. So the two girls had a bit of fun.

Sisters playing hide and seek.


And now it's back to the hospital and I'll spend the night with Bianca.

Medicines today:

• Tazocin (through IV)
• Gentamicin (through IV)
  
• Omeprazole - 1 capsule a day
• Fluconozole - 10 ml at night
• Metronidazole (through IV)
• Erythromycin (oral antibiotic)
• Co-trimoxazole (three times a week, twice a day)