A squishy, messy day

Thank you very much to John & Rose Newell and Paul Curtis for their generous donations to the Funrazor initiative. I really appreciate it!

Now, would you like the bad news or the good news first? Bad news first? Or rather I should say disappointing news first. Bianca wasn't well enough for Day 29 of the Delayed Intensification today and they will now look at her again on Wednesday to see if they will be able to continue then or still wait a bit. So I was pretty disappointed. The last thing we want at this stage is a delay and I really didn't want to have chemo happening over Christmas, but now it sort of looks as if it may happen. I was hoping for a quiet and uneventful Christmas.

Good news - Bianca was in a wonderful mood today. She was pretty much her old self, giggling and joking with the nurses. Even when she had to go for an X-ray this morning, she was smiling and pretty happy.

We played some Candy Land and she won the first few times. It was great fun and she would act out with her little "man" (she chose the red one) and will say things like "get out of my way yellow man" and "you can't catch me, yellow man" in a deepish voice. So it was great fun. She also drew lots of pictures. I then also decided that today (with Bianca being in such a wonderful mood) that it would be the perfect opportunity to do some paper maché. I've been wanting to make a piggy bank with Bianca and so Kate, the play specialist, kindly supplied some stuff and we started. It was quite messy, but great fun. Bianca started off by painting the "glue" with a paint brush and then she used her hands. Of course she then decided to play a trick on Jo and said to Jo "shake my hand". Jo played along and acted all shocked when she got some of the "glue" stuff on her hand and Bianca just burst out laughing. Of course then Kate, Keren, Danny and Serena all had to have a go as well. Just hearing her laugh like that was so good and so funny.

Tomorrow will be a week since Bianca was admitted to hospital this time round.

Tomorrow night Terence will be playing in a fun squash tournament (game 1 of 3 this week), so Sanna will be babysitting and I will spend the night at the hospital. So tonight after the hospital I had to quickly mow the lawns. It started getting quite long and I really did not want another phone call from the property manager. But at least it is done and should last for the next 2 weeks. I think my arms will be a bit sore tomorrow.

I guess that is what I find quite frustrating about these hospital stays - all the jobs in and around the house has to wait until I get back from hospital in the evenings and I say thank goodness for daylight savings time.

Medicines today:
  • Tazocin (through IV)
  • Gentamicin (through IV)
  • Omeprazole - 1 capsule a day
  • Fluconozole - 10 ml at night
  • Metronidazole (through IV)
  • Erythromycin (oral antibiotic)

1 comment:

Anonymous said...

Hi White family,

Wow Bianca is heading for the second half of DI, she has done so well. I know you have had some longstays in hospital but she is making great progress. I think of you all often. We have gone through a rough start to maintence, Laura is in hospital with pnuemonia and she has a very low tolerance of mercaptapurine(MP6) it keeps wiping her counts. You are welcome to link our site.
Take care