On Friday, Kate the play specialist gave me a wonderful kit on how I could teach Bianca to swallow tablets. For the next 2 years at least Bianca will have to swallow tablets pretty much every single day. Sometimes more than once a day. Bianca absolutely loves working with this kit. In fact, when Kate brought the kit to us, Bianca wanted to start immediately.
So the past few days we have been working on the suggestions Kate included in her kit. And today I managed to convince Bianca to actually swallow her Dexamethasone. It took a good 5 minutes, but we managed in the end. And then tonight we had to do her mercaptopurine (a chemo) and she did it all in a matter of 5 seconds! She is just so proud of herself and she makes me so proud as well!!! I am so happy that it took so much quicker than I thought it would.
Sanna also came back from her trip to the South Island. Bianca was so very happy. I think she really missed Sanna. It was pretty hard to try and explain that technically Sanna was still on holiday.
Today was actually a pretty good day. Bianca wasn't really clingy tonight, just a bit tearful around bedtime. And I'm still waiting for the huge appetite to arrive. When Bianca first went on the Dex she was constantly asking for food, but tonight she just asked that I put a snack pack next to the side of her bed and that it should be marmite sandwiches. But tomorrow is Day 5 of the steroids and I'm hoping that the past 4 days now at the start of our maintenance is a sign of things to come, of how it will be for us. But we never know, and for us Dexamethasone has always been a bit of an unpredictable one.
All we can really do is hope that one good day will follow another.
- Dexamethasone - 2 tablets twice a day
- Mercaptopurine - 1 tablet a night