Today is exactly 1 week since starting Maintenance. It's been a great week. Bianca is still swallowing her tablets and it's been so much easier than I ever anticipated. This was the best ever advice we got, thank you so much Kate!
I'm hopeful that the way things were this past week is pretty much the way it will be for us going forward, but of course no matter how hopeful, I'm so aware that reality is sometimes very very different. Weeks like the past week is comforting, it feels great, it feels like the old days to some extent (even though we will never again have the life we had before), but I'm wary of feeling too comfortable because then if things do happen, then it will catch me by surprise and I will be totally unprepared.
I'm starting to become a little excited that I might be able to go back to work soon. But I'm just starting to think about it. Not quite there yet.
It's also been a bit of a sad week though. Every day I follow the stories of so many other brave kids out there fighting their battles courageously and this week I read that 3 little children (Ava, Dawson and Isaac) passed away. I feel so sad for them. It really broke my heart. Events like these really pull me back to reality when I realise just how tough this battle or ours really is. When things go well it is easy to have a false sense of security, but things can change just so quickly and unexpectedly. So I pray that these families find the comfort that they need to help them through this difficult and challenging time.
- Mercaptopurine - 1 tablet a night
- Methotrexate - 1.5 tablet at night